• Ali Isaac

Why I Won’t Let You Mind My Special Needs Child

Updated: Mar 11

Carys on holiday 2012 in Kalymnos.

It’s not that I don’t trust you. It’s not that I think you won’t take proper care of her, or that I think I’m a better parent than you. It’s nothing arrogant like that at all.


But there is a lot of potential for things to go wrong. In particular, Carys could go into heart failure at any time. It’s a fact we have to live with, although to look at her, so robust and full of life, you would never think so.


She also has a tendency to stop breathing when she coughs, or a little bit of food lodges in her throat, or she takes too big a swig of juice, because her little system is too weak to cough up effectively.


I know that you are just as capable as me in dealing with situations like that. Every parent knows what to do when a child coughs or chokes. Every adult knows when they need to call an ambulance for events they cannot deal with themselves.


So that’s not it either.


My friends are precious to me, because I know I am not an easy person to be a friend of. I’m a bit of a loner, I spend a lot of time tapping away at my computer or visiting ancient piles of stones in the middle of nowhere, when I could be socialising.


Or Carys is sick, or like now with the Wilbargar Therapressure, going through something which can’t easily be managed outside of the home.


My friends are precious to me, because I have no family around to help out when things get tough or I’m not coping very well. I know I lean on you quite a lot at times.


But still I don’t ask for you to mind Carys.


The reason for that is something I feel sure many other parents of children with special needs will understand. It’s because my friends are precious to me that I won’t let you mind Carys.


Maybe that doesn’t make sense… I mean, who can I trust more than my nearest, dearest friends? But it’s not about trust. The thing is, I don’t want to lose any of you.


If you minded Carys for me, and something went wrong, I know that you would never forgive yourself, even if I did, because that’s the kind of person you are, and that’s one of the reasons I love you for.


And even though I know what the risks are with Carys, and even though I know you would have done everything humanly possible for her, there would still be a nagging doubt in the back of my mind, a doubt I would not want to acknowledge, but which would gnaw away at me from it’s little dark corner forever.


You would feel guilty, and I would too; for leaving her just so I could go and have fun, and for putting someone I care about in such a horrendous position.


I don’t want to do that to us. I value my friends, and don’t want anything to come between us. And that’s why I won’t let you mind Carys.

#CFC #raresyndrome #specialneeds #friendships #motherhood #trust #childminders #babysitting #Family #carers #disability #CardiofaciocutaneousSyndrome #Parenting #babysitters #Carys

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About Ali

I recently graduated from Maynooth University with a First Class Honours Bachelor of Arts degree in English and History with a Special Interest in Irish Cultural Heritage. Here is where I write about my passions...

 

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