• Ali Isaac

A Carys Update: July 2018 The Sponsored Walk

Updated: Jan 26, 2020

Some of you may remember my recent Facebook posts about the school sponsored walk. In some ways, it’s a bit ironic that a little girl who can’t walk is being asked to go on a sponsored walk. Walking is something we have been working on since Carys was about three years old. We have had many trials and tribulations along the way, but for someone who was never expected by medical experts to even be born alive, she’s doing pretty well!

Besides, Carys’s school is worth it. She goes to the Holy Family School in Cootehill. We are so lucky. The staff, from the teachers, to the kitchen staff, the therapists, the two lovely nurses, the cleaning staff, the bus driver and monitors, they are all totally dedicated to our special children, and there is so much love and joy and happiness in that school. I can’t think of anywhere I would rather send Carys. They have my complete trust.

There is no point doing a sponsored walk, and then sitting in a buggy the whole way round. Carys had to do her bit too. She can’t walk far, and on uneven ground, she needs a helping hand. If you follow this blog, you will know the ordeals she has, and is still, enduring, in her battle to walk independently. The paces she took were symbolic, and emotional.

I want to thank the school for supporting Carys through her education. As you might expect, it involves far more than teaching. I also want to thank those friends who reached out and sponsored Carys; your kindness and generosity will not be forgotten. You know who you are, and when I see you, I will thank you personally; it means a lot.

The school had a wish list for €11,000 worth of equipment, including white boards and sensory equipment. As Carys has multiple sensitivity issues, this will directly benefit her. Your generosity has helped raise €7862.60 towards that list. That’s a phenomenal result from one event.

thank you!

Carys's Sponsored Walk. #livingwithaspecialneedschild 'cardiofaciocutaneoussyndrome #raredesease. Waiting for the off with big brother Malachy in charge of the buggy.
Carys's Sponsored Walk. Waiting for the off with big brother Malachy in charge of the buggy.
Carys's Sponsored Walk. aliisaacstoryteller.com. #livingwithaspecialneedschild 'cardiofaciocutaneoussyndrome #raredesease
Have favourite rainmaker, will travel. Can we just get started?
Carys's Sponsored Walk. aliisaacstoryteller.com. #livingwithaspecialneedschild 'cardiofaciocutaneoussyndrome #raredesease
Through the woods...
Carys's Sponsored Walk. aliisaacstoryteller.com. #livingwithaspecialneedschild 'cardiofaciocutaneoussyndrome #raredesease
Past the river...
Carys's Sponsored Walk. aliisaacstoryteller.com. #livingwithaspecialneedschild 'cardiofaciocutaneoussyndrome #raredesease
Don't let go, Daddy!
Carys's Sponsored Walk. aliisaacstoryteller.com. #livingwithaspecialneedschild 'cardiofaciocutaneoussyndrome #raredesease The door to carys's classroom.
The door to carys’s classroom… can you see the balloon with her name on it?
Carys's Sponsored Walk. aliisaacstoryteller.com. #livingwithaspecialneedschild 'cardiofaciocutaneoussyndrome #raredesease
Pah! Buggies are for wimps! I can walk to the car! Bye for now, folks, and thanks for watching/ reading my mom’s blog post about me.

#school #CFCSyndrome #specialneeds #sponsoredwalk #momblogger #motherhood #learningtowalk #childhood #walking #Family #sensoryequipment #disability #gratitude #disabled #fundraising #thepoliticsofwalking #CardiofaciocutaneousSyndrome #Parenting #Carys

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